Hola a tod@s,
The 2 April is celebrated every year Day World Autism Awareness. To this end throughout the month of April they are usually dedicate worldwide various events and campaigns. Autism is “a spectrum of disorders characterized by severe developmental deficits. Affect socialization, planning and the emotional reciprocity, and sometimes it causes repetitive or unusual behaviors.” In Spain the statistics of these cases comes 1 O 2 children per hundred. (health Act). This is a fairly high fee that is increasing in recent years. Nevertheless, We find little information about this syndrome, which it remains a great unknown.
That is why I am dedicating the publication autism, to take awareness and try to learn more about it. Knowing more we can communicate better with parents and children of families affected and give them the support to be dealt with this issue in the best way possible! This information is for us, parents. But it is essential that everyone talk to your child / a and explains how a child with autism, how to interact with a person with this disorder and that this child needs confirmation and acceptance.
To explain well I will tell you about a real case of a child who lives in Sant Cugat. So we will give more visibility and know the special characteristics of a person with autism, and how is your day day. First I want to thank Mom child be with us, for your time and for sharing your story. Because I think it is a sensitive topic which costs speak.
With this she also wants to take advantage and go to all of us: Children with autism are like any child, with the only difference that interpret the world in their own way. As a rule they are neither more nor less intelligent than others. There is a myth that these children are sobrecapacitados that is not entirely true. The best way to help families with children with this disorder is primarily informed and explain to our children that is autism.
I spoke with mom asking several questions. Below you can see all our conversation and told us she.
hello Anna, thank you very much for staying with us to discuss that topic. It is a sensitive issue and I am grateful to share with us your situation.
1. How old is your child and when you find out who has autism?
My child has now 8 years. We discovered that ultimately has autism when he was 3 years. At this time we lived in Belgium. But we begin to suspect since he was one and a half.
2. Which they were significant signs that it is likely that autism is? What made you seek help?
For that a year and a half suddenly ceased to talk (before said breast, father, friend, goodbye, dame.. typical for this age), look at us, play with his brother.. Until now it seemed so normal. He did not answer his name either. She laughed for no reason, I walked in a circle, claps and did not play with toys like other children in daycare. In his nursery in Belgium we were referred to a specialist who had suspected that autism is treatable and led us to make comprehensive test. This test had to do in their native language in order to have a definitive character.
3. As in Belgium they handled cases of children with autism?
In Belgium the waiting time for state aid is very high. So we started private therapies. After a few years we moved to Sant Cugat.
4. Since when you are in Sant Cugat? Which it offers state aid or social security for children with their diagnosis and their families?
We've been here almost 4 years. For families with children with autism disorder there is an economic aid in the form of scholarship. For example if a child makes private therapy is a state scholarship once a year. This scholarship covers in our case a 30-35% expenses. That the private school must give an assessment that type of treatment and therapy it is needed exactly and how much is the monthly cost. In addition to families with children with disorders have the right 2×500 euros per year requested in Social Security. You also have a deduction from the tax base 100 euros per month as the working mother. After we pulled the card disabled, request at Terrassa, "Service orientation and assessment for people with disabilities". We waited a year and a half for the official diagnosis. When you receive the card give a list of benefits: discount on the purchase of a car, Additional financial support, scholarship for therapies.
5. Which “process” legal when there is suspicion that a child has autism?
I can not say whether by age and the case if the “process” assessment and treatment assignment can vary. I can tell you as it worked for us.
Well normally where doubt arises in the nursery because the child is surrounded by other neurotypical children (without autism). First we went to our official diagnosis (translated and authenticated) the Department of Education of the City of Sant Cugat to tell us about possibilities for schools. We derived the EAP (Team Consulting and Counseling) to make us advice and confirm the diagnosis. I guess if you start the process from zero here, It would take you about 6 months to have the diagnosis by a team of specialists.
EAP is the organization that helps parents of children. Schools are accountable to this organization to fulfill all rules and recommendations given. This is a center that deals with all children who need help with their education. They value the child what kind of school must be: The first option is a special school for children with disorders, where groups are 5 O 6 kids with 2 monitors. The second option is that the child is in a municipal school but with a special monitor for, accompanying him throughout the day. The third option is a municipal school with a special sector SIEI ("Intensive support for inclusive schooling") in-school specialists working with children with special needs as Bobi.
In this case children are most of the time with the teacher and other children. Only when they have problems to understand the subject of the class or need to take a break go to a special room that is adapted to your needs. Sant Cugat in several schools of this type that are specialized by type of disorder that can have child – for example autism, dyslexia, motor problems. Accordingly EAP derives the child to the appropriate school.
6. A school that was assigned at the beginning Bobi?
The first two years at school Bobi was concluded El Pinar de Nuestra Señora (all seats in municipal were busy as we were halfway through the school year). P4 and P5 there made, He adapted very well and had a great deal. They decided to put it in the class with younger children to adapt to the language and because it is physically a little smaller. are professors, despite not having special training for children with disorders she did very well (with the support of specialists EAP) and we are very grateful. People EAP came to school and made an assessment of the classroom, They advised us how to build a quiet corner for Bobi. We also got ideas like school supplies tailor and made periodic assessments of the work of the school.
Bobi Photos of Nuestra Señora del Pinar:
7. Now that school visit Bobi?
We decided to change schools for this primary to specialists throughout the day, which may be with and help. We had the choice between 4 municipal schools. We went to see them and we chose ours: The Olivera. Generally in each school there is a possibility that a child with special needs can study in, with either a monitor or UC industry.
You can read more in the second part of the interview which will be published soon!